As many researchers at UCSF community are looking to conduct research on COVID-19, we would like to let you know of a resource that can help you gain timely access to the UCSF COVID-19 patient data in our electronic health record (APeX).
BCHSI, CTSI and IT partnered to create a ‘blanket IRB’ that enables access to the UCSF EHR COVID-19 Data. With this IRB-approved study, structured data on UCSF COVID-19 tested and diagnosed patients is currently available for computational analysis, and is refreshed on a daily basis. The IRB also includes access to clinical notes for COVID-19 tested and diagnosed patients, and access to comparative/control data for patients not tested for COVID-19; both of these data sets will be available soon.
You can obtain access to the UCSF COVID-19 data mart by joining the IRB-approved COVID-19 collaborative study for prospective and retrospective computational analysis (COVID EHR IRB # 20-30545). We are ready to submit an IRB modification to add Pis and study staff to this already-approved IRB.
Learn more and submit your request for access here (if link does not work, copy and paste this URL into a web browser: https://data.ucsf.edu/covid19 )
Finally, we have planned the following Zoom sessions to provide more information on the study and the available data. Please feel free to join whichever works best with your schedule:
- April 17, 2020, 11:30 – 12 PM – Zoom details (or if link does not work Meeting ID: 978 2411 6613; Password: 010699)
- April 24, 2020, 10-10:30 AM – Zoom details (or if link does not work Meeting ID: 910 2281 0849; Password: 027069)
- UCSF COVID-19 Data Mart Team
(representing BCHSI, Academic Research Systems/IT, CTSI)